Pain and quality of life in adults with sickle cell disease

Abstract

Aim: Aim of the study was to examine the relationship between pain and quality of life in adult patients with sickle cell disease (SCD) and to examine complications of SCD on pulmonary system. Material and Methods: A total of 25 individuals (19 male, 6 female) diagnosed with SCD were included in the study. Pulmonary system, quality of life and pain was measured. Pain in rest and activity was questioned with Visual Analog Scale. The quality of life was assessed by the Short Form-36 (SF-36) Scale. Results: It was determined that the individuals experienced an important level of pain in rest and activity levels, however it was seen that the pain level in activity was higher. It was determined that the oxygen saturation average was 91% and incidence of secretion and the number of coughing individuals was 6 and that 2 individuals used accessory respiration muscles. It was also found out that the SF-36 Scale’s parameters’ scores were low and that the quality of life of individuals were negatively affected. There was a moderate, negative and significant correlation between pain in rest and SF-36 Scale’s physical function, pain, general health, mental health parameters. Conclusion: It has been concluded that in the treatment of patients with SCD, although it is not mentioned in patient history, pain related problems should be taken into consideration. We believe that pulmonary and pain rehabilitation to patients with SCD will support their wellbeing.