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    The effect of an educational intervention for caregivers of children receiving palliative care: A quasi-experimental study
    (Elsevier Science Inc, 2026) Kenc, Irem; Yayan, Emriye Hilal; Zengin, Murside
    Purpose: The study examined the impact of an educational intervention delivered to caregivers of children receiving palliative care. Design and methods: This study was designed as a quasi-experimental single-group pretest-posttest study. The study was conducted on 57 caregivers of children followed up in the paediatric palliative care unit of a city hospital in the Central Anatolia region of T & uuml;rkiye. A demographic information form, PalliCare Needs Scale and PalliCare Management Scale were administered to the caregivers before the educational intervention. A post-test was administered to all participants after educational intervention. Results: The difference between the PalliCare Needs Scale pre-test and post-test scores of the participants was found to be statistically significant (p < 0.001). When the participants' PalliCare Management Scale scores were analysed, the pre-test median total score was 3.36, while the post-test median total score was 4.09, and a statistically significant difference was found between these scores (p < 0.001). Conclusions: It was observed that the educational intervention applied to caregivers of children in need of palliative care resulted in a significant improvement in the identification of care needs and care management. Practice implications: Training programmes for caregivers in the palliative care process should be expanded, standardised to improve the quality of care, and integrated into health policies. (c) 2026 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.
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    The Experiences of Primary Caregivers of Children Receiving Palliative Care: A Qualitative Study
    (Lippincott Williams & Wilkins, 2026) Zengin, Murside; Yayan, Emriye Hilal; Kenc, Irem
    Pediatric palliative care presents a complex landscape for primary caregivers, who play a pivotal role in managing the care and well-being of children with life-limiting or life-threatening conditions. The present study aimed to explore the life experiences of primary caregivers of children receiving pediatric palliative care. This study used semistructured interviews that were audio recorded with 19 family caregivers of children who had received pediatric palliative care in the pediatric intensive care unit. Most of the primary caregivers included in the study were the children's mothers. The results of the study revealed 4 main themes with 13 subthemes: (1) adjusting to a new life; (2) primary caregivers' adaptation to the illness; (3) ongoing challenges; and (4) maintaining social networks. Primary caregivers of the children receiving palliative care have social and financial difficulties that will affect their life cycle, including their daily and social life. Strategies to support caregivers should be developed to create an environment in which the problems of caregivers of children receiving palliative care are refined, and necessary changes should be encouraged through the development of training programs.