The Experiences of Primary Caregivers of Children Receiving Palliative Care: A Qualitative Study
Küçük Resim Yok
Tarih
2026
Yazarlar
Dergi Başlığı
Dergi ISSN
Cilt Başlığı
Yayıncı
Lippincott Williams & Wilkins
Erişim Hakkı
info:eu-repo/semantics/closedAccess
Özet
Pediatric palliative care presents a complex landscape for primary caregivers, who play a pivotal role in managing the care and well-being of children with life-limiting or life-threatening conditions. The present study aimed to explore the life experiences of primary caregivers of children receiving pediatric palliative care. This study used semistructured interviews that were audio recorded with 19 family caregivers of children who had received pediatric palliative care in the pediatric intensive care unit. Most of the primary caregivers included in the study were the children's mothers. The results of the study revealed 4 main themes with 13 subthemes: (1) adjusting to a new life; (2) primary caregivers' adaptation to the illness; (3) ongoing challenges; and (4) maintaining social networks. Primary caregivers of the children receiving palliative care have social and financial difficulties that will affect their life cycle, including their daily and social life. Strategies to support caregivers should be developed to create an environment in which the problems of caregivers of children receiving palliative care are refined, and necessary changes should be encouraged through the development of training programs.
Açıklama
Anahtar Kelimeler
coping strategies, family burden, pediatric palliative care, primary caregiver, qualitative research
Kaynak
Journal of Hospice & Palliative Nursing
WoS Q Değeri
Q3
Scopus Q Değeri
Q2
Cilt
28
Sayı
2
