Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study

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dc.authoridYazıcı, Ayten/0000-0003-2167-4509
dc.authoridÖztürk, Kübra/0000-0003-0466-0228
dc.authoridTanatar, Ayşe/0000-0002-1386-4575
dc.authoridBaba, Ozge/0000-0002-2442-1550
dc.authoridBAGLAN, ESRA/0000-0001-5637-8553
dc.authoridBağlan, Esra/0000-0001-5637-8553
dc.authoridŞahin, Nihal/0000-0002-2122-6952
dc.authorwosidYazıcı, Ayten/AAT-3636-2020
dc.authorwosidÖztürk, Kübra/ACH-1722-2022
dc.authorwosidTanatar, Ayşe/AAD-4491-2020
dc.authorwosidBaba, Ozge/GVT-1192-2022
dc.authorwosidBAGLAN, ESRA/KOG-0594-2024
dc.authorwosidtuncer kuru, fatma/KUD-3281-2024
dc.authorwosidAcarı, Ceyhun/W-3361-2017
dc.contributor.authorSozeri, Betul
dc.contributor.authorSahin, Nihal
dc.contributor.authorAcari, Ceyhun
dc.contributor.authorAvar Aydin, Pinar Ozge
dc.contributor.authorBaba, Ozge
dc.contributor.authorBaglan, Esra
dc.contributor.authorBakkaloglu, Sevcan
dc.date.accessioned2024-08-04T20:54:58Z
dc.date.available2024-08-04T20:54:58Z
dc.date.issued2024
dc.departmentİnönü Üniversitesien_US
dc.description.abstractBackgroundJuvenile idiopathic arthritis (JIA) is a prevalent childhood chronic arthritis, often persisting into adulthood. Effective transitional care becomes crucial as these patients transition from pediatric to adult healthcare systems. Despite the concept of transitional care being recognized, its real-world implementation remains inadequately explored. This study aims to evaluate the thoughts and practices of healthcare providers regarding transitional care for JIA patients.MethodsA cross-sectional survey was conducted among pediatric and adult rheumatologists in Turkey. Based on the American Academy of Pediatrics' six core elements of transitional care, the survey included 86 questions. The respondents' demographic data, attitudes towards transitional care, and practical implementation were assessed.ResultsThe survey included 48 rheumatologists, with 43.7% having a transition clinic. The main barriers to establishing transition programs were the absence of adult rheumatologists, lack of time, and financial constraints. Only 23.8% had a multidisciplinary team for transition care. Participants agreed on the importance of coordination and cooperation between pediatric and adult healthcare services. The timing of the transition process varied, with no consensus on when to initiate or complete it. Participants advocated for validated questionnaires adapted to local conditions to assess transition readiness.ConclusionsThe study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.en_US
dc.identifier.doi10.1186/s12969-023-00943-3
dc.identifier.issn1546-0096
dc.identifier.issue1en_US
dc.identifier.pmid38167070en_US
dc.identifier.scopus2-s2.0-85181247651en_US
dc.identifier.scopusqualityQ2en_US
dc.identifier.urihttps://doi.org/10.1186/s12969-023-00943-3
dc.identifier.urihttps://hdl.handle.net/11616/101751
dc.identifier.volume22en_US
dc.identifier.wosWOS:001138114200002en_US
dc.identifier.wosqualityN/Aen_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherBmcen_US
dc.relation.ispartofPediatric Rheumatologyen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectAdolescenten_US
dc.subjectArthritisen_US
dc.subjectJuvenileen_US
dc.subjectChronic diseaseen_US
dc.subjectTransition to adult careen_US
dc.titleTowards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey studyen_US
dc.typeArticleen_US

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