Experience of mothers with Down syndrome children at the time of diagnosis

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dc.authoridDogan, Derya Gumus/0000-0003-1587-9639
dc.authoridBuyukavci, Mehmet Akif/0000-0001-6884-1832
dc.authorwosidDogan, Derya Gumus/ABG-9945-2020
dc.authorwosidBuyukavci, Mehmet Akif/HCH-2615-2022
dc.contributor.authorBuyukavci, Mehmet A.
dc.contributor.authorDogan, Derya G.
dc.contributor.authorCanaloglu, Sinem K.
dc.contributor.authorKivilcim, Meltem
dc.date.accessioned2024-08-04T20:45:50Z
dc.date.available2024-08-04T20:45:50Z
dc.date.issued2019
dc.departmentİnönü Üniversitesien_US
dc.description.abstractIntroduction. Down's syndrome (DS) is a common genetic disorder. The families of children with DS generally do not receive sufficient information at the time of the diagnosis. They are dissatisfied with the manner of healthcare professionals. The objective was to evaluate the experiences of mothers of children with DS at the time of the diagnosis and the communicative attitudes of healthcare professionals. Population and methods. Mothers who had children with Down syndrome were included. The experiences of the mothers at the time of diagnosis and the attitudes of the healthcare professionals were evaluated by a semi-structured interview. Results. The study sample was 43 mothers. Eight children had been diagnosed with DS prenatally, and 35 had been diagnosed postnatally. Eighteen of the mothers had received the diagnosis in a pediatric clinic, and 16 had been told of the diagnosis in an obstetric clinic. More than half the mothers had received the first information about their child's diagnosis from a pediatrician. Only five of the 43 mothers had received detailed information. Twenty-three of 32 mothers said that they were met with a negative attitude. Generally, the time put aside to inform the families about the diagnosis was less than 5 min. Conclusions. Mothers of DS children want more information about DS from healthcare professionals. Furthermore, they want this information to be delivered in a supportive and sensitive manner. Healthcare professionals, especially pediatricians need to allocate sufficient time to discuss DS and its challenges with the family.en_US
dc.identifier.doi10.5546/aap.2019.eng.114
dc.identifier.endpage119en_US
dc.identifier.issn0325-0075
dc.identifier.issn1668-3501
dc.identifier.issue2en_US
dc.identifier.pmid30869484en_US
dc.identifier.scopus2-s2.0-85062891056en_US
dc.identifier.scopusqualityQ3en_US
dc.identifier.startpage114en_US
dc.identifier.urihttps://doi.org/10.5546/aap.2019.eng.114
dc.identifier.urihttps://hdl.handle.net/11616/98724
dc.identifier.volume117en_US
dc.identifier.wosWOS:000462484500029en_US
dc.identifier.wosqualityQ4en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherSoc Argentina Pediatriaen_US
dc.relation.ispartofArchivos Argentinos De Pediatriaen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectattitudeen_US
dc.subjectdiagnosisen_US
dc.subjectDown's syndromeen_US
dc.subjectmothersen_US
dc.subjectpediatricianen_US
dc.titleExperience of mothers with Down syndrome children at the time of diagnosisen_US
dc.typeArticleen_US

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