Hematopoietic stem cell transplantation activities and HRQOL of refugee or asylum seeker children in Turkiye: A multicenter study

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dc.authoridÖZBEK, Namık Yaşar/0000-0001-6857-0681
dc.authoridKüpeli, Serhan/0000-0001-7271-1803;
dc.authorwosidARMAN BİLİR, Özlem/HFZ-8242-2022
dc.authorwosidÖZBEK, Namık Yaşar/HPC-6496-2023
dc.authorwosidKüpeli, Serhan/J-1588-2014
dc.authorwosidOk Bozkaya, Ikbal/P-4121-2015
dc.authorwosidAkbayram, Sinan/AAG-5737-2020
dc.contributor.authorGokcebay, Dilek Gurlek
dc.contributor.authorKupeli, Serhan
dc.contributor.authorGursel, Orhan
dc.contributor.authorBilir, Ozlem Arman
dc.contributor.authorAkyay, Arzu
dc.contributor.authorPekpak, Esra
dc.contributor.authorAkbayram, Sinan
dc.date.accessioned2024-08-04T20:53:03Z
dc.date.available2024-08-04T20:53:03Z
dc.date.issued2022
dc.departmentİnönü Üniversitesien_US
dc.description.abstractBackground Refugee or asylum seekers (RAS) children are at increased risk of physical, developmental, and behavioral health issues. The aim of this study was to evaluate clinical and psychosocial outcomes of hematopoietic stem cell transplantation (HSCT) in RAS children and compare health-related quality of life (HRQOL) to those of Turkish peers. Methods This retrospective study included patients who underwent HSCT aged 0-18 years and completed 100-day post-transplant. The PedsQL 4.0 Generic Core Scale was used in children over 5 years old to compare HRQOL. Results A total of 166 RAS patients (M/F: 106 /60) underwent 174 HSCTs (six patients had two, and one had three HSCT) compared to 66 Turkish patients. The mean age of the patients in the RAS group was 7.8 +/- 4.9 years and similar to controls. A total of 124 patients (75%) were from Syria, and 49 (25%) were from other countries in the Middle East and Africa. The cause of migration was war in 121 (74%) RAS patients. Complications of HSCT were no different between the groups. However, the rate of neutropenic sepsis was significantly higher in the RAS group (p = 0.004). The total scores of HRQOL were not different between RAS and controls. In the RAS group, ratings of social functioning were lower in patients with consanguinity or non-malignant disease or who had match-related donors. Discussion Identifying areas of difficulty in subscales of HRQOL may help physicians to classify patients who need additional supportive care. Regular monitoring and supporting physical needs may result in better functional outcomes after HSCT.en_US
dc.identifier.doi10.1111/petr.14397
dc.identifier.issn1397-3142
dc.identifier.issn1399-3046
dc.identifier.issue8en_US
dc.identifier.scopus2-s2.0-85139459414en_US
dc.identifier.scopusqualityQ2en_US
dc.identifier.urihttps://doi.org/10.1111/petr.14397
dc.identifier.urihttps://hdl.handle.net/11616/100931
dc.identifier.volume26en_US
dc.identifier.wosWOS:000864933900001en_US
dc.identifier.wosqualityQ4en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.ispartofPediatric Transplantationen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjecthematopoietic stem cell transplantationen_US
dc.subjectquality of lifeen_US
dc.subjectrefugee childrenen_US
dc.titleHematopoietic stem cell transplantation activities and HRQOL of refugee or asylum seeker children in Turkiye: A multicenter studyen_US
dc.typeArticleen_US

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