The relationship between the care burden and quality of life of parents who have children with hematological problems and their perceived social support

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dc.authoridYıldırım, Maksude/0000-0002-7041-3885
dc.authoridDağ, Yeliz Suna/0000-0002-4547-5494
dc.authoridYAYAN, Emriye Hilal/0000-0003-0075-4171
dc.authoridSülün, Ayşe Arıcıoğlu/0000-0002-4084-5273
dc.authorwosidYıldırım, Maksude/ABI-3536-2020
dc.authorwosidDağ, Yeliz Suna/HLQ-1012-2023
dc.authorwosidYAYAN, Emriye Hilal/AAB-9526-2020
dc.authorwosidSülün, Ayşe Arıcıoğlu/ABD-8935-2021
dc.contributor.authorYildirim, Maksude
dc.contributor.authorYayan, Emriye Hilal
dc.contributor.authorDag, Yeliz Suna
dc.contributor.authorSulun, Ayse
dc.contributor.authorAkyay, Arzu
dc.date.accessioned2024-08-04T20:50:47Z
dc.date.available2024-08-04T20:50:47Z
dc.date.issued2022
dc.departmentİnönü Üniversitesien_US
dc.description.abstractPurpose: The purpose of this study was to examine the interrelationship of the caregiver burden, perceived social support, and quality of life of parents who have children with hematological problems. Design and methods: The design and methods included a descriptive study with 141 parents of children with hematological problems. The introductory information form, the Zarit Burden Interview (ZBI), multidimensional scale of perceived social support (MSPSS), and the EUROHIS-QOL.8 (WHOQOL-8) scale were used as data collection tools. The data obtained were analyzed using descriptive statistics and structural equation models. Results: As a result of the conducted correlation analysis, it was determined that there was a positive correlation between parents' perceptions of social support and their quality of life, and a negative correlation between their perceptions of social support and the caregiver burden (p < 0.05). As a result of the structural equation model, it was determined that the social support received by the parents had a significant effect on their caregiver burden (beta = -0.40; p < 0.05), and their quality of life (beta = 0.42; p < 0.05). Conclusions: The conclusion formed was that it can be said that parents' perceptions of social support affect their caregiver burden and quality of life. Parents with high perceptions of social support perceive the burden of caregiver to be low and their quality of life to be high. Practice implications: The practice implications are that healthcare professionals can contribute to reducing the caregiver burden and improving the quality of life of parents, by strengthening the social support systems of parents with sick children. (C) 2021 Published by Elsevier Inc.en_US
dc.identifier.doi10.1016/j.pedn.2021.10.004
dc.identifier.endpageE112en_US
dc.identifier.issn0882-5963
dc.identifier.pmid34711471en_US
dc.identifier.scopus2-s2.0-85117936704en_US
dc.identifier.scopusqualityQ1en_US
dc.identifier.startpageE107en_US
dc.identifier.urihttps://doi.org/10.1016/j.pedn.2021.10.004
dc.identifier.urihttps://hdl.handle.net/11616/100283
dc.identifier.volume63en_US
dc.identifier.wosWOS:000820533000015en_US
dc.identifier.wosqualityQ2en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherElsevier Science Incen_US
dc.relation.ispartofJournal of Pediatric Nursing-Nursing Care of Children & Familiesen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectHematologyen_US
dc.subjectParentsen_US
dc.subjectCaregiver burdenen_US
dc.subjectSocial supporten_US
dc.subjectQuality of lifeen_US
dc.titleThe relationship between the care burden and quality of life of parents who have children with hematological problems and their perceived social supporten_US
dc.typeArticleen_US

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