Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals

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dc.contributor.authorSahin, Nihal
dc.contributor.authorBaykal, Gulcan Ozomay
dc.contributor.authorAcari, Ceyhun
dc.contributor.authorAydin, Pinar Ozge Avar
dc.contributor.authorBaba, Ozge
dc.contributor.authorBaglan, Esra
dc.contributor.authorBakkaloglu, Sevcan
dc.date.accessioned2026-04-04T13:33:06Z
dc.date.available2026-04-04T13:33:06Z
dc.date.issued2024
dc.departmentİnönü Üniversitesi
dc.description.abstractBackgroundThe field of transitional care for chronic conditions in adolescents, notably juvenile idiopathic arthritis (JIA), is rapidly growing. Transitioning these patients to adult healthcare systems presents significant challenges in practical implementation. Consequently, it would be appropriate for each country to develop a transition program tailored to its specific infrastructure. To pursue this goal, a Delphi study was conducted to identify the key components of transitional care in JIA.MethodsThree panels and two rounds were held consisting of adolescents and young adults, parents, and clinicians (pediatric or adult rheumatologists). As a result, feedback on acceptance of the key statements of transitional care was obtained using the Delphi method.ResultsOut of 102 contacted, 88 (86.3%) participants responded to the Round 1 survey, which included 48 clinicians, 20 youths, and 20 parents. In Round 2, the number of clinicians dropped to 29, while the number of youths and parents remained constant. Based on expert opinions, 29 statements were selected for the first round. Statements that received >= 70% approval in the first round advanced to the next round. Sixteen statements did not achieve >= 70% approval. Of the remaining, 12 were reviewed in the second round, while four were excluded.ConclusionAlthough consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon. Acceptance and applicability of the final 20-item checklist in clinical practice are critical for advancing JIA transition care in Turkey.
dc.identifier.doi10.1186/s12969-024-01047-2
dc.identifier.issn1546-0096
dc.identifier.issue1
dc.identifier.orcid0000-0002-2122-6952
dc.identifier.orcid0000-0001-5637-8553
dc.identifier.orcid0000-0002-7175-0015
dc.identifier.orcid0000-0003-3427-1418
dc.identifier.orcid0000-0001-6172-7762
dc.identifier.orcid0009-0005-1533-3101
dc.identifier.orcid0000-0003-3014-5692
dc.identifier.pmid39695685
dc.identifier.scopus2-s2.0-85212501968
dc.identifier.scopusqualityQ1
dc.identifier.urihttps://doi.org/10.1186/s12969-024-01047-2
dc.identifier.urihttps://hdl.handle.net/11616/108933
dc.identifier.volume22
dc.identifier.wosWOS:001380843900003
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherBmc
dc.relation.ispartofPediatric Rheumatology
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/openAccess
dc.snmzKA_WOS_20250329
dc.subjectAdolescent
dc.subjectArthritis
dc.subjectChronic disease
dc.subjectDelphi-study
dc.subjectJuvenile
dc.subjectTransition to adult care
dc.titleConsensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals
dc.typeArticle

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